Monday, February 21, 2022


This guy was pretty proud to pull himself up on a box this morning! You could literally see how happy he was to be moving more normally.

This evening he gingerly crawled himself over to his chair and climbed up!

He read for a bit and then went to look for ducks. Too bad the pond is frozen again, but tomorrow is forecasted to be in the 50s and rain so perhaps they'll be back. 

Pain isn't too bad, but you can certainly tell when we are getting  closer to time for his next dose. He just gets really grumpy and doesn't move much. 

He still won't eat. He had a single bite of yogurt and played with some freeze dried pears. He scraped them with his teeth and bit a chunk off and spit it out a few times. It's super weird that he asks to eat and is constantly saying "num num num" but won't actually eat. It's been an entire week since he ate. I did communicate with Dr Park and he said to give it a little more time, he will touch base later this week.

Fluids are also still an issue, though they did improve a little today. We're at 9 ounces via bottle and 19 minutes of nursing. Yesterday was 4 ounces and 24 minutes of nursing. Wet diapers have decreased (losing all that extra) but still at an okay level.  

Not sure what's going on with ask if this.  We certainly didn't exist and do appreciate prayers!

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