Urologist Update

We had our post-ultrasound follow-up with Dr Park today.  

He was happy with everything he saw on the ultrasound. He was also glad to hear that Judah was improving sleep-wise and doing great elsewhere. 

I'm not sure if he had his own concerns with the continued hydronephrosis, or if he was making recommendations based on my concerns and the continued discomfort at nights, particularly when he drinks a lot of fluids that day. 

However, he does think intermittent cathing is a necessity in his future. He does not necessarily think it's best at the moment, simply because of the inability to get a 2-year-old to understand what's going; thereby likely causing life-long trauma that may result in him refusing to cath as he gets older. (Sounds like he's seen this before.)

At this time, he has offered an unconventional approach that may have a positive effect on system drainage- botox in the sphincter muscle. This would, in theory, relax the muscle and allow the urine to just continuously dribble out. It works for about 10-12 months, so while it isn't a long term solution, it also doesn't allow a return to status quo if it isn't working. 

The alternative is a mitrofanoff, which is to use the appendix as a connection between the bladder and the abdomen, allowing us to put a catheter through the abdomen, which is less traumatic and easier to do, especially while he is sleeping. But this is a big surgery. And there are many other potential risks to worry about like infection with an opening in the abdomen, as well as infection from cathing. 

So...we appreciate prayers for wisdom as we consider the options. For now, Dr Park advises we do nothing, or try the botox. 

I also spoke to him about seeing Dr Baker, now that she has moved to Columbus. He was completely in favor of seeking her opinion/guidance about Judah's treatments and said he'd be happy to send an email or call with his info. 

Dr Park is such a blessing to have as Judah’s main provider. Please say a prayer of thanks that the Lord led us to him, and pray that he continues to be so good to Judah and his other patients. He really is an admirable example of a good and humble man just trying to make a difference in the world. 

Judah showing off the eggs he gathered while at the Martin's this weekend. 

And a chicken that has been kicked out of the coop and kept trying to get in the house! She knocked on the door for a while, and when that didn't work, she got up there and knocked on the window! Scared us good, let me tell you.